liv

joined 1 year ago
[–] liv@kbin.social 23 points 8 months ago

This literally happened to me, only I lost way more than half my income.

It's horrible, and frequently remembering the life I had is very painful.

I can't work out what possible upside you think there is to this situation.

[–] liv@kbin.social 2 points 8 months ago* (last edited 8 months ago)

That sucks in terms of proving disability in your country (you would be eligible already in mine but since disability here is only half of minimum wage it's not really the solution like it is where you are).

But it's really fantastic that you are able to do so much!! That's way better. You're going to be able to work from home lying down. Lots of cool ideas in here.

I think you should still apply for disability every year. Maybe find a support group or organisation for people with broken necks/spinal injuries, they might know some aspects of the process.

Good luck to you. I know what it's like to lose everything, and I really hope you are able to rebuild some kind of life for yourself.

[–] liv@kbin.social 2 points 8 months ago (2 children)

A CPET is a cardiopulmonary exercise test. The 2 day CPET is when you get the test and then get it again 24 hours later.

People with me/cfs have different results than sedentary controls, so it's a good way of helping prove disability.

If you didn't know what ME/CFS is (myalgic encephalomyelitis) then you haven't been diagnosed with it and none of this applies to you, but I thought it was worth mentioning in case you had.

[–] liv@kbin.social 4 points 9 months ago

You can also do temp work, English language teaching, proofreading, data entry.

[–] liv@kbin.social 11 points 9 months ago* (last edited 9 months ago) (6 children)

You may have something different but if you have me/cfs you need to hit up the support groups, you can prove disability with a 2-Day CPET test.

I'm not in the US but many of the Americans in my support group were denied the first time they applied and got it on the second.

[–] liv@kbin.social 1 points 11 months ago (1 children)

Hi! I didn't realise.

If you want to be involved there too, I can add you!

[–] liv@kbin.social 1 points 1 year ago* (last edited 1 year ago)

I remember you!!! Yeah that person was a bit hard to understand. Sometimes I couldn't see their posts.

I really appreciated you standing up for me about conserving traditions! :-) ♡

[–] liv@kbin.social 1 points 1 year ago

Thanks! It's so nice knowing it won't all be deleted!

[–] liv@kbin.social 4 points 1 year ago (7 children)

Great news, he has sorted it out for me! Thank you for suggesting it!

@conservative is saved!

[–] liv@kbin.social 2 points 1 year ago (9 children)

Thank you for the idea. I'm not sure how to contact Ernest?

[–] liv@kbin.social 4 points 1 year ago (11 children)

Ahhh, I'm so disappointed, I've been working on @conservative for months, and really hoping to take it on,
and it looks like I missed out.

Back when I started they actually held a poll about whether my kind of nature content would be OK and it was voted yes, so I hope the new owner is pro-conserving things and doesn't purge it and turn it into just another US politics sub!

[–] liv@kbin.social 4 points 1 year ago* (last edited 1 year ago)

Not that I can find so far.

Despite the boost in numbers, I think making the jump from reddit has been too labour intensive for LC/PASC and ME/CFS communities. It's the one thing I still visit on reddit.

It's not much, but I am beginning to put a bit of data on !mecfs@kbin.social, and longhaulers are welcome there. It also collects mastodon toots on related hashtags.

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