this post was submitted on 21 Nov 2024
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IMO weird this is news and that the hospital that treated her considered her to lack capacity to make her own decisions. She seemed what we call "AOx4", still cognitive, etc.... Mitochondrial disease doesn't necessarily affect cognition?!? As a healthcare worker in America I see this all the time actually where patients do not believe the healthcare system.
I.e. Patient going home without oxygen when its indicated. I call APS but have to let them make decision to go home without it.
Patient declining all wound care (very common unfortunately). We have to respect that too.
Healthcare professionals are right most of the time ive seen but it doesn't matter. We always respect patient autonomy. Theres alot of rules and laws about decision making, surrogate decision makers, etc. Trust me, hospitals do not want lawsuits lol
Also, anyone over 18 in the United States should have a healthcare directive so that in event you really cannot make decisions for yourself (like a car accident, stroke, etc), pick someone who can make decisions on your behalf and who will respect your wishes. Its so important and not often spoken about.