this post was submitted on 30 May 2024
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As a parent of two kids on the spectrum my messaging has been just this with a resounding "there are legions of autistic people that are NOT represented. Ever."
Every representation of autistic people you see in the media, or chatting with online are the exception and the fact that they collectively shit on the fact that there are many isolated and struggling is goddamn frustrating.
If you're autistic and on Lemmy I'm proud of you. My youngest son can't manage his own diabetes, can't wipe his ass, needs help showering, has worsening anxiety and ADHD. I could go on.
As a parent I'm supposed to defer to that representation in the media or on Lemmy because "they're autistic bro." disgusts me.
My final takeaway. Fuck the DSM V for making Asperger's the same as Autism. It isn't. It hurts both parties but I'd argue it hurts Autistic people far more than Asperger's people.
Thanks for raising this, I get attacked here if I ever point out autism is a disability. I can only assume these people have literally never met anyone with anything but the mildest of Aspergers cases.
lol all that just to finish with a definitive statement about autism. Asperger's has always been an aspect of autism. Dr. Asperger was a Nazi scientist, responsible for deciding who among the neurodivergent would go to the gas chambers. the patients that he deemed to have "mild enough" autism to be used for labor, were called "Asperger's".
It ain’t much but I’ll take it
Thanks for sharing your experience. It sounds like you have your hands full and as a parent I can only empathize. I totally hear you about media representation missing the mark. We have some roadway to make. I'm surprised how many parent friends we have that are relatively clueless (even though I must admit, until this January when we got the diagnosis I was too).
My little one started group therapy about two months ago and I'm super grateful even though the journey ahead is still quite long.
On the Asperger's topic: I was under the impression Asperger's is no longer in use as a diagnosis and was folded into the ASD (Autism Spectrum Disorder). At least that's what we learned this year throughout the diagnosis process.
Stay strong brother (or sister)!
From a diagnosis and classification, Autism = Asperger's.
From a lived experience, Autism != Asperger's.
The latter has been validated by every expert I have talked over the years from doctors to therapists to education.
Ok. Interesting. I'll take your word at it.
Please don't but pay attention to your support group as you move forward. You will learn there are a lot of people that genuinely care about your child and their future. The irony of course is the vast majority of these people make little to no money and are doing what they do because they love it.
As part of your research are you speaking with autistic adults?
I have not yet. I would like to though