this post was submitted on 07 May 2024
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[โ€“] Lumisal@lemmy.world 9 points 6 months ago (2 children)

Hi there. Had kidney failure for about 8 years.

There was this one medication I badly needed to control secondary hyperparathyroidism. Literally used all avenues, and couldn't get it approved or covered, other than by paying around 800$ for a single dose. I even had private insurance still at the time btw. The alternative was a surgery to remove a parathyroid gland which would then lead me to having other severe health complications if I got a kidney transplant. You know, due to now missing an organ.

Second treatment in Finland when I was just VISITING, not even a resident yet - "oh, you're PTH levels are extremely high. We're going to give you "medicine I've been trying to get for months".

Just like that. No struggle even. Cost? 25$, and that includes the superior diafiltration treatment (USA only has dialysis, despite it giving poorer quality of life and lowering life expectancy, thanks to lobbying from DaVita.

Anyway, fuck you ๐Ÿ™‚

[โ€“] ultra@feddit.ro 2 points 6 months ago

I'm really sorry you had to go through all of that, but it's great that you finally managed to get the treatment you needed.