this post was submitted on 05 Feb 2024
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what the actual fuck..... thanks for sharing your story and I wish you courage. Have you considered moving ? given the severity of your condition ?
It's always a consideration, but the question is where would we move to (and how much am I willing to uproot my family)? Canada is a nice place with a better healthcare system, so maybe there? But that's expensive all on its own, and I have to consider that I have two autistic kiddos who are currently receiving their education at the best school in the state for special ed kiddos. Is it worth it? Maybe not. For now, I think we should stay where we are. I love it here, except for the high cost of my own care. Think I'd rather stick it out and fight for a better system here. Maybe we can improve things for everyone instead of jumping ship.
Yea, I can certainly understand the choice of staying and fighting for change
All things considered, their situation is not as bad as it could be. I had a job where one of my duties was to get prior authorizations for every procedure we did in an oncology-focused plastic surgery clinic. The vast majority of the procedures were breast reconstruction following mastectomy and skin cancer excisions. I had an insurance company demand documentation and evidence of medical need to close the incision site after excising the melanoma. They were gracious enough to allow the excision without requiring a prior authorization, but in order for the surgeon to close that incision (or in this particular case, fill in the area with a skin graft because the amount of skin to be removed precluded a simple closure), we had to file a mountain of paperwork on a tight deadline because the procedure couldn't wait more than a week or so.
I've also worked in hospitals, and every hospital I've worked in has social workers on staff to help patients line up emergency insurance coverage or financial assistance for emergency medical care. I never actually saw the bills for it, but we treated a kiddo that was a bystander in a drive-by shooting that was transferred to our hospital from another ER so that they could have the pediatric trauma surgeons try to fix his femur. So that's two top-level ER visits, an ambulance ride, an ICU stay, and probably a bunch of surgeries and associated hospitalizations...because this 2 year old got hit in the leg with a stray bullet. The total almost certainly topped 7 digits. Shit's fucked, yo.