this post was submitted on 12 Dec 2023
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Autism

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Abstract

The broad autism phenotype (BAP) is a set of personality and language characteristics that reflect the phenotypic expression of the genetic liability to autism, in non-autistic relatives of autistic individuals. These characteristics are milder but qualitatively similar to the defining features of autism. A new instrument designed to measure the BAP in adults, the Broad Autism Phenotype Questionnaire (BAPQ), was administered to 86 parents of autistic individuals and 64 community control parents. Sensitivity and specificity of the BAPQ for detecting the BAP were high (>70%). Parents of children with autism had significantly higher scores on all three subscales: aloof personality, rigid personality, and pragmatic language. This instrument provides a valid and efficient measure for characterizing the BAP.

Note: This questionnaire is meant to be administered to individuals with an autistic relative to assess if they have traits that are similar to autism but not enough for a diagnosis, ig?

I would like to read your thoughts on the scale and general concept of this scale. Also, feel free to share your scores!

Link the the actual article.

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[–] BackOnMyBS@lemmy.world 10 points 11 months ago (7 children)

I completed this questionnaire before reading about it to limit any possible impact my knowledge of the scale could have on my responses. When I got the scores,

Aloof: 4.25

Pragmatic Language: 4.17

Rigid: 4.17

I thought, "Hmm, maybe I'm not that autistic after all." Then, I saw the statistics of the study here, and cracked up. I'm definitely 100% autistic. When will this impostor syndrome end?

[–] RedWeasel@lemmy.world 7 points 11 months ago (1 children)

I question it sometimes(rarely, but sometimes) and yeah, my score. I assume higher is better though :)

Aloof: 4.92 Pragmatic Language: 5 Rigid: 5.59

[–] BackOnMyBS@lemmy.world 6 points 11 months ago

I assume higher is better though :)

I like that perspective

[–] constantokra@lemmy.one 6 points 11 months ago

Try going into a busy public bathroom, especially one with hand dryers. I find that chases any periodic doubt out of my mind.

[–] frogfruit@sh.itjust.works 5 points 11 months ago* (last edited 11 months ago)

Aloof: 4.84

Pragmatic Language: 4.34

Rigid: 4.92

I guess I'm pretty autistic 🤷

[–] Azzu@lemm.ee 5 points 11 months ago (2 children)

I got

Aloof: 4

Pragmatic Language: 4.17

Rigid: 2.67

my rigidity is very low, I'm definitely not autistic :D

[–] potoo22@programming.dev 5 points 11 months ago* (last edited 11 months ago) (1 children)

Or you got the ADHD & Autism combo. Routines are more of a suggestion, but you don't have the motivation to keep them. Like, yeah, I should put away my clothes, but that seems like extra work. I'll just leave them in the pile. (There are multiple piles)

[–] Azzu@lemm.ee 2 points 11 months ago

Oh I was absolutely being sarcastic. In an Autism community, no less, I know, I'm such a rebel ;)

No sarcasm: I definitely have ASD+ADHD ;)

[–] BackOnMyBS@lemmy.world 3 points 11 months ago

my rigidity is very low, I’m definitely not autistic :D

Phew! Made it by just a few points lol

[–] SgtAStrawberry@lemmy.world 4 points 11 months ago (1 children)

Aloof 4.1 That's quite high.

Riged 5.1 That is very high.

Language 3.7 That's not so bad... look at statistics never mind.

I'm going to be happy about managing to get a 5 on a chart that put 4 at the top. That is something right.

[–] BackOnMyBS@lemmy.world 2 points 11 months ago (1 children)

That is something right.

Yes, that is definitely a thing, and one I seem to prefer.

[–] SgtAStrawberry@lemmy.world 2 points 11 months ago

Marvellous then we all agree

[–] uzziah0@lemmy.world 3 points 11 months ago (1 children)

I'm over the top on all, too. 4.5, 3.67, and 3.5 I'm not diagnosed autistic, but my wife and son thinks I am, and on all other tests I'm in range. Where is the details on what these results mean?

[–] BackOnMyBS@lemmy.world 2 points 11 months ago (1 children)

I think you'd have to read the article to get the best understanding. I'll try to give a summary though.

Basically, the scale isn't meant to assess for autism exactly. It's based on results that have found autism to have genetic links, so the scale is meant for genetic family of autistics to test for autism-like traits. They call this typifying concept Broad Autism Phenotype (BAP) and has three personality characteristics: 1) aloof, 2) rigid, & 3) pragmatic language. They define the characteristics as follows:

aloof personality is defined as a lack of interest in or enjoyment of social interaction; rigid personality is defined as little interest in change or difficulty adjusting to change; and pragmatic language problems refer to deficits in the social aspects of language, resulting in difficulties communicating effectively or in holding a fluid, reciprocal conversation.

People that meet the researchers' criteria for BAP tend to have fewer "high-quality intimate relationships" and "more deficits in use of social language" than parents of children with Down's Syndrome. I didn't see them make any comparison to allistics or other groups, but I skimmed the article, so maybe they did.

Regarding the scale: The researchers administered the scale to a nonrandom sample of 2 populations: 1) parents of diagnosed autistics from an established Autism Registry and 2) parents of allistics with no first-degree autistic relatives. They administered a structured clinical interview to the first group to assess for BAP. This created two groups: 1) BAP present and 2) BAP absent. In other words, the former were clinically deemed to have autism-like personality traits, and the latter were deemed to not. The group of parents with no first-degree relatives served as a control group. They then administered the BAP scale you took to all of the participants and got the results presented in this histogram. As you can see, the scale matched up well with their clinical assessment, so the scale seems to be working properly.

As far as what it means: The score is just a measure of the presence of those 3 traits. The higher the score, the more present they are. One would expect autistics to have higher scores that the BAP group, but I didn't see if they said that and there may be some validity issues with that idea anyway. It would be weird for autistics to score lower than the BAP group though. Additionally, it's not meant to diagnose autism, and BAP isn't really a diagnosis. It's type they made up using DSM4 criteria of autism. Anyway, if your scores fall with in the range of the little black tails on top of the BAP present group, then you may meet their criteria for BAP. If your scores fall within the tails of either of the other two groups, then you would likely be more similar to them in regards to BAP. However, the sample was nonrandom, so we can't say that with nearly decisive confidence.

Layman's answer regarding your particular scores: There's some evidence that hints you might be deemed BAP if they clinically interviewed you. This could possibly give you some insight into your social life if you tend to have less close friends and difficulty picking up and using communication in person.

Street answer: You might be kinda autistic, which may explain some problems you have with people. It doesn't necessarily mean you are kinda autistic, fully autistic, or neither. If you would like to try other autism tests, check out the Helpful Resources link in the side bar and feel free to share your results.

[–] uzziah0@lemmy.world 2 points 11 months ago (1 children)

Thanks for that. I did skim the article, but didn't find the definitions for each of the three. I have taken other tests. I'm mostly helped to understand how I act and interact, and it helps my wife see me differently, mostly in the different perspective I have and when I'm stuck on something but she's moved on. I'll look at the other links, too.

[–] BackOnMyBS@lemmy.world 1 points 11 months ago

You're welcome! I'm happy to read that it helped you out 🙂

[–] ted@sh.itjust.works 2 points 11 months ago (1 children)

I'm nt and got 2, 2.25, and 2. The paper reference definitely put things in perspective.

[–] BackOnMyBS@lemmy.world 1 points 11 months ago

What did you get from it?